Welcome to my online diary about the struggles of dealing with rheumatoid arthritis. I write about about the highs and lows of day to day life in an honest way as possible. I hope to share my experiences with those in a similar position and help them to realise they are not alone. It is a unique postion to be in, to have a condition which most people associate with older people when you are just starting out in life. But together, as we discuss our experiences, we can feel less isolated and alone.

About Me

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Leamington Spa, Uk, United Kingdom
I am 32 years old woman with Rheumatoid Arthritis. The disease came on literally overnight five years ago when I was 27 years old. I was diagnosed with many different illnesses before it was labelled R.A. I am taking methotrexate, humira injections, steroids and painkillers. It's been the hardest 4 years of my life though things seem to have turned a corner and I have met a wonderfully supportive partner. For a long time I have tried to fight it and had many different therapies to treat it. I lost faith in the medical world after several misdiagnoses and inadequate treatment. I then chose to follow an alternative route and have tried reiki, spiritual healing, alexander technique, kinesiology and EFT as I believe there is an emotional and psychological element that plays a part in disease. All treatments have helped the RA though not cured it. I am currently on the Margaret Hills Clinic programme for treating arthritis and this has proved successful so far. I am trying to come to terms with the illness and deal with it rather than fight it. Follow my day to day trials and tribulations coping with the disease and how it affects my life.

Monday, 2 May 2011

Up and Down Days

My bodies temperature has been up and down all day long.  One minute I am sweating and the next freezing cold.  I had tomatoes the other day and apple juice for the first time in a while (the acid in tomatoes are not good for arthritis) but I thought it's just a one off.  But the next day I paid the price as my body was stinging all day long.

Today I ate porridge then veggie toad in the hole for dinner.  and I have been feeling fine, the pain is less in the joints. 
It's the mornings that are hellish at the moment.  I have recently had a viral infection which has wreaked havoc on my joints and given me the worst RA pain I have ever experienced. 

I did lots of praying and had lots of praying done for me during this time.  I feel this is invaluable when you feel so low from the pain.  It's like a life line of hope and helps keep me going.

Also realised that indulging in thougts of self pity isn't helping my condition either and so have been making a huge effort to keep my thoughts positive and uplifted as possible.

Been lonely with partner away for work in the week.  Going to look for more domestic support as my cleaner has recently left.

Thanks for reading, please leave your comments.

2 comments:

  1. Hi Jen, I know what you mean about indulging in negative thoughts, but it can be so hard not to. I'm 35 and have been suffering from RA for a few years now. I know how you feel. Self-pity only makes things worse, but the pain seems to bring it on. It's a viscous cycle. If you're interested, http://onlineceucredit.com/edu/social-work-ceus-pain has some great advice for countering those negative thoughts when they arise. I'll be keeping you in my thoughts!

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My Rheumatoid Arthritis Diary