Welcome to my online diary about the struggles of dealing with rheumatoid arthritis. I write about about the highs and lows of day to day life in an honest way as possible. I hope to share my experiences with those in a similar position and help them to realise they are not alone. It is a unique postion to be in, to have a condition which most people associate with older people when you are just starting out in life. But together, as we discuss our experiences, we can feel less isolated and alone.

About Me

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Leamington Spa, Uk, United Kingdom
I am 32 years old woman with Rheumatoid Arthritis. The disease came on literally overnight five years ago when I was 27 years old. I was diagnosed with many different illnesses before it was labelled R.A. I am taking methotrexate, humira injections, steroids and painkillers. It's been the hardest 4 years of my life though things seem to have turned a corner and I have met a wonderfully supportive partner. For a long time I have tried to fight it and had many different therapies to treat it. I lost faith in the medical world after several misdiagnoses and inadequate treatment. I then chose to follow an alternative route and have tried reiki, spiritual healing, alexander technique, kinesiology and EFT as I believe there is an emotional and psychological element that plays a part in disease. All treatments have helped the RA though not cured it. I am currently on the Margaret Hills Clinic programme for treating arthritis and this has proved successful so far. I am trying to come to terms with the illness and deal with it rather than fight it. Follow my day to day trials and tribulations coping with the disease and how it affects my life.

Sunday, 20 February 2011


It's been a while since I have written but finally have got round to writing this blog again.  So what's been going on with the R.A?  This week I will be seeing a new consultant which I am feeling quite hopeful about as the last two haven't really been much help in many ways, I get a few minutes every six months and just dealt some more drugs, it makes me really angry actually that the NHS staff are so overworked that when you go to see the specialist, it's like taking a trip to the local shop to get a pint of milk in terms of time and the fact it feels quite impersonal.  

I guess I do feel a bit bitter about the treatment of the disease, I feel it could have been managed much better and instead my last but one consultant taking responsibility for certain errors in 'care' it appears he has lumped the blame onto me for mistakes made as my new consultant (who reads notes from old consultant) seems to think I am incapable of taking medication at set dates and times.

Waste of time if you ask me, some of these people are being paid £100,000 a year and their 'care' leaves a lot to be desired.  I have found more than one consultant to be cold, impersonal and quite closed minded (in terms of treating R.A with anything other than toxic, industrial strength medication! Bonus please - ehem!)

I really believe people have to take their health care into their own hands and be responsible in looking for ways to help/manage/treat the disease.  There IS something in that dairy, refined sugar and citrus fruits are a source of aggravation to the joints, no matter what my seven year medically trained doctor may say, it's my body and I know what does and doesn't respond to and my own experiments have proved this to me.

We have to trust in ourselves and try and get to the root cause of why we have this disease.  I believe that although some diseases have a genetic components, environment and stress always play a part in disease and I also believe that any disease can be treated.

Unfortunately, western medicines provide huge profits so it's not in the drugs companies interests to look for cures, though some eastern traditional medicine use simple 'alternative' methods such as using herbalism, acupuncture and spiritual practices (meditation and prayer) to enhance health and well being.

Maybe I have become too cynical over the years, I know most doctors are doing their best and have limited times and budgets but it's difficult not to feel frustrated when your in constant pain and stuck on medication for years.

Unfortunately I haven't been sticking to my cider vinegar diet (Margaret Hills Clinic).  I had a break a few weeks ago when I went away and haven't got back onto it, even though I was feeling huge benefits.

I feel quite cross with myself for not getting back onto a diet that I know will help so much.  What can I do to motivate myself.  A friend made me laugh when she said someone she knew would 'eat slugs on toast' if it meant curing here arthritis!  Not sure I would go that far, but hey with a bit of butter, who knows!

I have also started taking medication called cymbalta (duloxetine) It has many benefits, one being an anti depressant which I could do with right now and also works on nerve pain for R.A and fibromyalgia so double the benefits.  I have been taking for about 12 days an already feel an improvement.  I am less irritable, more positive and am getting more things done.  Also my thoughts are less negative so all in all I am impressed.  Some reviews on the net are very bad for this drug but for me, I am quite happy so far.

Right off to bed now, so until next time, it's bye from me, over and out.

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My Rheumatoid Arthritis Diary